Epilepsy Foundation of Greater Cincinnati

Welcome to the website of the Epilepsy Foundation of Greater Cincinnati!

Our Mission

The Epilepsy Foundation leads to fight to stop seizures, find a cure and overcome the challenges created by seizures.

Thank you for visiting us and for your interest in our agency!

***Attention College-Bound and current College Students with epilepsy! The deadline to apply for the Taylor Huth Memorial Scholarship is February 10, 2012. Click here to view the application process.***

Epilepsy Hockey Night with the Cincinati Cyclones!

Join us on Saturday, February 25, 2012 at 7:30 pm at US Bank Arena as the Cyclones take on the Kalamazoo Wings! There will be lots of extras for lucky members of our group as we come together to raise funds for our many programs! Click here for more information and an a ticket order form.

Emerald Miles 5K Run/Walk!

March 10, 2012 is right around the corner! Visit the Emerald Miles website here for all of the details and registration information!

Alex's Blog

Alex is a 25 year old affected by epilepsy. Read Alex's story. Follow and feel free to communicate with Alex on his blog: www.hopefulreality.wordpress.com

A Partnership in Action: Central & South Texas Affiliate and National Office Create New Hispanic Resources: In partnership with the Epilepsy Foundation Central & South Texas, a series of web video and audio “charlas,” i.e., chats featuring individuals speaking about epilepsy, have been developed. The three new video podcasts have been produced in Spanish with English subtitles to educate Hispanics on epilepsy and to share the compelling stories of those whose lives are impacted by epilepsy. In addition, four new audio podcasts have been produced and are posted on YouTube. Topics include seizures and first aid, myths and stereotypes, treatment, and pregnancy and epilepsy.

Video Podcasts: Video 1; Video 2; Video 3

Cincinnati Children's Hospital is recruiting children with epilepsy who are 6-11 years old to participate in a research study exploring sleep difficulties and seizure control. To find out more details and whether or not your child qualifies for the study, click here.

The Epilepsy Phenome/Genome Project (www.epgp.org), sponsored by the National Institutes of Health, is the largest research study ever created to identify genes that influence epilepsy and genes that affect an individual’s response to seizure medications. As of June 2011, more than 3,400 participants have enrolled in the project through epilepsy centers across the country. Additional volunteers are still needed to provide a blood sample and participate in interviews. The goal is to use this information to understand what causes epilepsy, which treatments might be effective for an individual, and why some families have multiple relatives with epilepsy.

Numerous safeguards are in place to protect the privacy of participants. Participants will receive a small compensation for their time, and can participate by phone and mail from anywhere in the U.S.

EPGP is looking for two types of participants:

1) People who have been diagnosed with epilepsy, and also have a brother, sister, parent, or child with epilepsy.

2) People who have been diagnosed with one of several types of rare epilepsy and both biological parents are willing to participate. These types of epilepsies include seizures due to: Infantile Spasms, Lennox-Gastaut Syndrome, Polymicrogyria, or Periventricular Nodular Heterotopia.

If you would like more information about the project please contact:

Website: www.epgp.org

E-mail: info@epgp.org

Toll-free Phone: 1-888-279-3747

Recommendations for Care

Getting the best treatment from the right doctor at the right time is key for people with epilepsy. The Epilepsy Foundation’s Professional Advisory Board has developed two new booklets with this goal in mind. The booklets help people know when to seek treatment for seizures and contain information about new onset seizures, patients already taking epilepsy medications, uncontrolled seizures and making the most of your office visit. Take a look at them here. “Recommendations for Care of Children with Epilepsy” and “Recommendations for Care of Adults with Epilepsy”.

Accredited online training in Epilepsy and Seizure Response for EMS personnel is now available. The online training is free, and the user can receive free continuing education hours from CECBEMS. We all recognize the growing need to provide information to EMS personnel about responding to individuals with epilepsy and seizure-related calls. We also realize that these professionals need educational information in a format that is easy to access and convenient for their busy schedules. This approximately 45 minute course aims to train EMS personnel on seizure recognition, correct response to seizures, and awareness of the unique needs of people with epilepsy who they may encounter.

Just click the photo below, follow the link to"Access Trainings", register with a user name and password and then enter promotion code 04.

Patient Assistance

If you are having trouble paying for your medications, click here to access a list of corporate programs that might be able to help.

Thank you Dover Fluid Management for a wonderful Community Care Day!

Learn more.

Great things are happening!

Click to join us and learn about upcoming events!

Follow this link to fill out a Job Application for employment with the Epilepsy Foundation of Greater Cincinnati!